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Children Who Need Palliative Care drop-in

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Tuesday, 25 June, 2019
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Tim

I attended an event in Westminster  to celebrate Children’s Hospice Week on Tuesday 18 June. I also joined children’s palliative care charity Together for Short Lives’ call on NHS England to keep its promise to protect the Children’s Hospice Grant – and go further by increasing it to £25million per year.

A new report published on the 20th June by Together for Short Lives has found, across England:

  • In the two years between 2016/17 and 2018/19, the funding each children’s hospice charity received from local NHS clinical commissioning groups (CCGs) reduced on average by more than £7,000 – a 2% cut from £371,303 to £364,076.
  • In the last year, between 2017/18 and 2018/19, nearly three quarters (74%) of children’s hospice charities experienced a real-terms cut (a cut, freeze or increase below 1.8%) in the money they received from CCGs. Over half (56%) of children’s hospice charities experienced cuts or freezes in CCG funding in cash terms.
  • Funding is also very patchy and varies widely across local areas: 15% of children’s hospice charities receive nothing at all from their CCGs.
  • The money that each children’s hospice has to spend each year to meet the needs of seriously ill children and their families has grown to an average of £3,681,442 – a 4.5% increase between 2016/17 and 2018/19, faster than the rate of inflation.
  • This combination of falling CCG funding and increasing costs is hitting our most vulnerable children and their families: a fifth (19%) of children’s hospice charities are cutting vital short breaks for respite.

You can read this report via the attachment below

Attachments

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Together For Short Lives (645.13 KB) 645.13 KB

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